Submit public sources
Articles, toolkits, reports, policy links, and implementation examples.
Open science • Public evidence • Shared learning
Resources for building stronger patient and family engagement.
Public sources, transparent methods, and a simple pathway for collaborators to contribute evidence, benchmark examples, and improvement ideas.
Collaboration model
Open method. Public evidence. Shared review.
The website brings together the evidence, methods, benchmark criteria, and practical tools needed to understand and use the project.
The Notion workspace supports source intake, benchmark notes, evidence review, and toolkit improvement.
Contribute
A simple way to join the work.
Students, researchers, PFAC members, patients, care partners, and health system partners can request access to the collaboration workspace.
Share PFAC examples
Public models that help compare governance, safety input, equity, measurement, and follow-through.
Suggest toolkit updates
Ideas that strengthen patient benefit, leadership action, or care experience improvement.
Standard
Public and de-identified contributions only.
Do not submit PHI, confidential records, private patient details, restricted screenshots, credentials, or unpublished internal documents.
Resource map
Reusable links for validation and improvement.
These public resources support toolkit review, benchmarking, and future updates.
Featured live resource • CMS Open Data API
HCAHPS patient experience benchmark explorer.
Search any CMS-tracked hospital and compare selected HCAHPS patient-experience measures with its state and the United States. Public aggregate data only. No API key or login required.
Source datasets: CMS HCAHPS Hospital, State, and National. Measures are context signals, not proof that PFAC activity caused a score.
Dartmouth Atlas Data
Health-system variation, without the spreadsheet.
Pick a topic, start typing a region, then choose a measure.
Public Dartmouth Atlas HRR data. Suppressed values are shown as not reportable.
Live public data
Your hospital, the evidence, your population — live.
Public data sources, queried live. No patient data, no logins, no keys. Every number below states its source.
Checking live sources…
Clinical trials at your hospital
Search ClinicalTrials.gov for studies listing a hospital as a location — recruiting studies are where advisor input on recruitment and participant experience counts most. Live, no key needed.
What the evidence says now
Ongoing PubMed surveillance for PFAC and patient-engagement literature.
Loading evidence watch…
The population you serve
American Community Survey 5-year demographics for any U.S. county — population, poverty rate, and race/ethnicity breakdown as context for representation and access design. Choose the place; the site handles Census geography codes automatically.
No Census or FIPS code lookup needed.
CDC public health data
Community context from CDC
Choose a state and county. The site handles the county FIPS code automatically, then returns CDC PLACES health measures and the CDC/ATSDR Social Vulnerability Index.
No ZIP code or FIPS lookup needed.